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Ep106: Behavior, Advocacy, Siblings: Celebrating 2 Years of Podcasting
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Ep105: Spreading Love: The Life and Legacy of Karen and Her Family
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Ep104: Leave a Lasting Legacy with PWSA | USA (Episode Re-Air)
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Ep103: PWS Roadshow: Building Community, One Stop at a Time
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Ep102 Pulse 151: Disability Pride, Podcast Changes, Voices on VYKAT 6
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Ep101: Transitioning PWS to Adulthood
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Ep100 Pulse150: 100 Episodes, Convention, State Specific Events
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Ep99: Navigating School Transitions, Trainings, Non-Negotiables, and More with Destiny Pacha
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Ep98 Pulse 149: Events for Moms and Dads, Convention Registration, VYKAT Testimonial
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Ep97 Father's Day Special: Two PWS Dads, Two Events, One Powerful Mission
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Ep96 Pulse 148: Preparing for Summer, Awareness Month Gratitude, Getting Involved in Research
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Ep95 Garrick Siblings: Importance of Community and Listening
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Ep94 Advocacy is Everything: 2026 DC Fly-In Recap
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Ep93 Pulse 147: PWS Awareness Day, D.C. Fly-In Recap, Voices on VYKAT 5
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Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues
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Ep91 PWS Awareness Month is Here: How to Get Involved
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Ep90 Staying Curious: Continuing the Equity Conversation
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Ep89 Pulse 145: PWS Awareness Month, DC Fly-In, Voices on VYKAT 4, Autism Blog
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Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx
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Ep87: Pulse 144: Conference Scholarships, Sibling Blog, VYKAT Approval Anniversary
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Ep86: Homeschooling, The Ins and Outs of Educational Choice
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Ep85: Pulse 143 Hot Stove, Disordered Sleep, Voices on Vykat 3
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Ep84: Welcoming PWSA | USA's Equity Committee
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Ep83 Pulse 142: Nutrition, Rare Disease Week, Research and Study Opportunities
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Ep82: Kady Sweeney: See the Potential, Savor Typical Moments
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Ep81 Pulse 141: Caregivers Day, Voices on Vykat, Board Member Spotlights
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Ep80: What's in Store for PWSA | USA in 2026?
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Ep79 Pulse 140: Residential Providers, Plunge for PWS, PRV Win, Feeding Tubes
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Ep78: Miriam Chernick: Educating the Community
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Ep77: Limits, Perspective, and Mental Wellness
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Ep76 Pulse 139: Art Share Launch, Social Media Use, Voices on VYKAT Testimonial
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Ep75: Global PWS Registry 2.0
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Ep74 Pulse138: DC Fly In Applications, Mental Wellness, Save the Dates for 2026
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Ep73: Stacy's End of Year Message
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Ep72 Pulse 137: End of Year Reflection, Holiday Traditions and Tips, Clinical Trial Wrap-Up
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Ep71: Christian Garzia: Humor, Fairness, and Protection
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Ep70 Pulse 136: In Memory of Fausta, Give Kids a Chance Act, HERO Study Expansion, PWS Relationships Study
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Ep69: Joe Gill: Inclusion, Purpose, and the Little Things
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Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight
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Ep67: Broken Systems, Enduring Love, Single Caregivers Series
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Ep66 Pulse 134: Angel Drive Launch, Operation Holiday Cheer, Skin Picking, Self-Care, Gratitude
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Ep65: Grit, Grace, and Family, Single Caregivers Series
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Ep64: Henry McDonald: Dynamic Duo, Superhero
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Ep63: Nile Hope Workshop and Camp, Department of Education Layoffs, Prader Silly Live Auction
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Ep62: Teaching Emotional Regulation in Individuals with PWS: ABA Strategies for Lasting Success
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Ep61 Pulse 132: Gala Recap, DUR Boards, TREND Journey Prompts, Bullying Prevention Month
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Ep60: Rockie Penta: Caregiver, Roommate, Best Friend
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Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns
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EP58: Recognizing the Unsung Heroes of PWS
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Ep57 Pulse 130: Direct Support Professionals Week, DUR Written Testimony, Recursos en Español
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EP56: Celebrating One Year of Podcasting
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EP55: Hope, Perseverance, and Soleno's Path to an FDA-Approval for Prader-Willi Syndrome
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Ep55 (Bonus Episode!): Leave a Lasting Legacy with PWSA | USA
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EP54: Pulse 129: Nonprofit Day, Gala Emcee, Rare Across America, Parent Training for IEPs
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Ep53: Empowering Families with Dr. Destiny Pacha, Parent Submissions
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Ep52 Pulse 128: Make-A-Will Month, Big Advocacy Win, Dance Silly for Prader-Willi, BOSS Program Update, Harmony Biosciences Webinar
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Ep51 ADA History and Advocacy
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Ep50 Pulse 127: 50th Gala, Sunshine Act, BOSS Program, Golf Gimmes
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Ep 49: Endocrine in Teens and Adults: Conference Session
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Ep48 Pulse 126: Conference Wrap Up, PWS Comic Book, Interactive Map, Law Enforcement Letter
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Ep 47: Nutrition Recommendations for PWS: Conference Session
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Ep46: Pioneers in PWS Series - The Parent Mentoring Program
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Ep45 Pulse 124: Scoliosis Awareness, Conference App, Medicaid Expansion Call to Action, Livestream
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Ep 44: PWSA, IPWSO, FPWR: United in Hope
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Ep43: All Things Conference
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Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner
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Ep41: PWS Origin Stories, Success, and Awareness
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Ep40 Pulse 122: PWS Awareness Month, Family Conference Registration Closed, Interview with Destiny Pacha, VYKAT XR Townhall Summary
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Ep39 Unlocking a New Path to Treat Hyperphagia in PWS: A Conversation with Aardvark Therapeutics
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Ep38 Pulse 121: Occupational Therapy Month, Conference Cap, Awareness Month Proclamation, Financial Security Webinar
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Ep37 Ask Nurse Lynn: Growth Hormone, Skin-Picking, GLP-1s
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Ep36 Pulse 120: Annual Report, VYKAT XR Webinar, Awareness Proclamation Toolkit, Sibling Guide
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Ep35: PWS and Sibling Support
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Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide
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Ep33: Special Education and the Department of Ed.
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Ep32Pulse 118: Harmony Webinar, Hot Stove Dinner, State Advocacy, TREND GI Report, Community Publications
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Ep31 PWS Awareness Starts Here: Fundraising with Hope United & United We Brunch
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Ep30 Pulse 117: Commitment to Advocacy, Rare Disease Week, 50th Gala Tickets, Calls to Action
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Ep 29: Pioneers in PWS - Residential Care and the Professional Providers Advisory Board
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Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement
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Ep27: Advocacy with Terry Wilcox from Patients Rising
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Ep26: Clinical Trial Perspectives Part 1
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Ep25 Pulse 115: Countdown to Conference, Hot Stove Dinner, Changes at FDA, Volunteer Spotlight, Sertraline
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Ep24 TREND & PWS Connect
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Ep 23 Pulse 114: Celebrating 50 Years of Hope, Advocacy Class, PWSA Egypt, Journeys Project on Discord, Community Stories
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Ep22 Pulse 113: Marathon Runner, Inclusive Advocacy, Art Share Extension, PWS in Adulthood, The Holidays
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Ep21 Meet the PWSA | USA Staff
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Ep20 Pulse 112: Angel Drive, Georgia Advocacy, Growth Hormone, Clinical Trial Journey
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Ep19 Caring for the Caregiver
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Ep18 National Adoption Month, Adopting a Loved One with PWS
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Ep17 Pulse 111: 15Q Day, Hope in Action, Trend Pain Report, Hyperphagia Study
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Ep16 Self-Care, Self-Advocacy, and Gratitude
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Ep15 Pulse 110: Angel Drive Kick-Off, NORD Summit, Family Caregiver Month, Clinical Trial Journey
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Ep14: Adults with PWS Advisory Board
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Ep13 Pulse109: Physical Therapy Month, Dominique Valenti, FDA Meeting, PWS Book Review
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Ep12 PWS Parent Clint Hurdle Shares Advice for Dads, Personal Stories
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Pulse 108: Prepare for Holidays, New Staff, Operation Holiday Cheer, & More
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Ep10 Clinical Trials
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Pulse 107: Service Dogs, Podcast Update, Narcolepsy Spotlight, & More
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Ep8 Direct Support Professionals Week Panel Discussion
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